It is that time again...

It is time for me to beg for money for Ron to receive cognitive therapy next year. If you cannot give, please share. Thank you!

http://www.giveforward.com/poststroketherapy

What is grief....

What is grief? The dictionary says that grief is keen mental suffering or distress over affliction or loss. Grief is different for each person but for people in situations similar to mine, grief is an impossibly soul splitting, painful exercise in futility. The man I married is gone. My Ron started to die slowly after the first set of strokes. SO my grief is more complicated since I am unable to go through the grief process because technically Ron is still here. He is in the next room and I can't go to him and ask for a birthday hug, or just to hold me. I can't move on either because even though my Ron is gone, my heart didn't get the memo. Ron is my soulmate and has had a strong grip on my entire heart and soul for a very long time. I wouldn't have that part any other way.  In November we have been together for 15 years, and in January we have been married for 12. I got my epic love story. I am eternally grateful that he was given to me when we were so young, and I needed him so badly. He literally saved my life. I was in a very dark place when we met. He did everything in his power to show me the light and he did. He taught me what unconditional love truly meant. 

I have been asked on many occasions why I am not just happy that he is alive. Well, the answer to that is simple, watching him suffer almost daily is brutal. Each and every day I look for my Ron because each day I wake up and for just a moment I forget about the past 5 years. Just for that brief moment I have my fairy tale back. Then it hits me and he is gone again. People tell me a lot he doesn't LOOK sick but they don't witness when he has trouble finding the words or forgets to eat or the sleepless nights when his brain cannot figure out how to process an emotion. I try to filter things before the information gets to him, break it down into bits he can process but that isn't always the case. 

My goal each day is to try to make our sucky situation suck less so it doesn't upset him. He hates who has become and misses his old life. He loved being a firefighter. He loved our large group of friends and our active life. He misses the same thing I do..even if his memories have holes..He misses what we were before. I have noticed that I use that word a lot while telling stories... defining our lives to before he got sick. 

I try to go back and read the older posts on this blog, but I just can't seem to get past the first few sentences. I guess that means this will be raw for longer than I anticipated. I am grateful the memories and emotions are usually fleeting for him because this daily overflow of memories and pain is a lot for anyone to bear. I don't say that looking for pity for myself because there are people WAY worse than the hand we were dealt. If I am looking for silver linings, Ron not being able to "feel" much is definitely a lining of some sort. I am going to include a song that tells exactly how I feel about Ron. It was popular when he was hospitalized one of the first times. Read the lyrics with my story in mind, you will understand. And just like I always end these..for the ones who ask me what they can do for me..CHERISH EVERY SINGLE MOMENT BECAUSE YOU NEVER KNOW WHEN EVERYTHING COULD CHANGE IN AN INSTANT.

"Broken"

I wanted you to know I love the way you laugh
I wanna hold you high and steal your pain away
I keep your photograph, I know it serves me well
I wanna hold you high and steal your pain

'Cause I'm broken when I'm lonesome
And I don't feel right when you're gone away

You're gone away
You don't feel me here anymore

The worst is over now and we can breathe again
I wanna hold you high, you steal my pain away
There's so much left to learn, and no one left to fight
I wanna hold you high and steal your pain

[X2]
'Cause I'm broken when I'm open
And I don't feel like I am strong enough
'Cause I'm broken when I'm lonesome
And I don't feel right when you're gone away

You're gone away
You don't feel me here anymore

Broken by Seether featuring Amy Lee