This blog is to keep our family and friends updated on my husbands condition. This is also a place for me to get some blog therapy. My name is Amanda and my husband is Ron. He was diagnosed last year with Central Nervous System Vasculitis and our entire life was turned upside down. Thanks for reading.
Friday, April 17, 2009
04/15/09 Follow up visit
Ron had his follow up visit post hospital stay on Wednesday. Ron is battling bronchitis so she prescribed an antibiotic and nebulizer. They both seem to be helping tremendously. The appointment was pretty routine. We are doing a slow taper of his steroids back down to probably 20mgs. The most notable part is that his doctor wants us to go visit the Cleveland Clinic. The experts on this condition are located there. There has been a doctor with the clinic consulting on his case since the beginning however his doctor thinks it is time to actually go. We aren't sure when, but probably in May sometime. His coordination and speech are almost back completely to normal, however some of the residual balance issues can be attributed to the fluid in his ears from the cold. We go back in 3 weeks for another follow up. I will keep you posted. Thank you all again for the positive thoughts!
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THANKS FOR THE UPDATE. I AM SORRY THAT I HAVE NOT RESPONDED TO YOUR EMAIL, IT IS JUST CRAZY FOR ME RIGHT NOW TOO. I HAVE A GREAT NEPHEW IN CARDIC CARE AT CHILDRENS AND HAVE BEEN WORKING LIKE YOU WOULD NOT BELIEVE. 2-2 THREE DAYS A WEEK AND STIL AT THE DEPOT. WHEN YOU ADD TO YOUR BLOG FORWARD ME A COPY AS I MIGHT FORGET TO PULL IT UP REGULAR. YOU KNOW ME.. GOD BLESS YOU AND RON.....I MISS YOU HERE. RICHEST BLESSINGS TO YOU BOTH DONNA
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