Thursday, May 19, 2011


Just wanted to post this over here as well. Thank you again for all of your support.

May 2011

I am really horrible at updating this so I apologize for that. The stroke that Ron had in December did more damage than we realized. He had a neuropsych test done and the results were pretty surprising. I won't bore you with all the medical speak but his inability to control his impulses and the changes to his personality are significant. Our next step is to try to find some sort of cognitive therapy but as of yet I am not having much luck finding a place that accepts Medicare. Ron does not qualify for any supplemental insurance to his Medicare so we are required to pay the 20% that Medicare doesn't cover. That may not seem like a lot but when you count up how many doctor visits he requires plus the upcoming tests, well we are having trouble. Ron needs to have 2 tests done on his bladder to insure that the first chemo medication he was on did not cause bladder cancer...yes, the chemo causes bladder cancer. They are pretty positive that his issues are due to the miswired parts of his brain but we need to get these tests done to verify. We also need to get him in for treatment with a neuropsychiatrist. That is one of the downsides to living in the country, all of the doctors and specialists are at least an hour away. He has an appointment next week with his rheumatologist. I will try harder to keep this updated. Thank you for reading!