I wanted to post a little update for everyone. Ron had a MRI/MRA done on March 11th. The doctor called that afternoon and told us that the radiologist had located 2 new tiny strokes, less than 4mm a piece in size. The doctor was concerned but not overly so. We hoped Ron was finished IV chemo but the doctor has ordered at least one more, which he will receive on Tuesday March 25. The doctor has also requested we get a second opinion from another Rheumtologist. His doctor has never had a patient with this disease and she wants another set of eyes to look at his case. The doctor wanted us to go to the Mayo Clinic in Cleveland to consult with the experts on this condition. However we have decided to go to a local Rheumo first and then if they still feel it necessary, we will go to Cleveland. The doctor also wants us to make a decision about Ron having a brain biopsy. Before that though, the doctor is conferring with Ron's neurologist about getting another spinal puncture done to see how his spinal fluid looks. We will be meeting the new doctor and have the spinal puncture done sometime in the next few weeks. Ron will also have another MRI/MRA done towards the end of April. Ron has been feeling pretty good and is improving each day. He was hoping to go back to work at the beginning of April, but now we are not sure when he will be able to.
In happier news, we just returned from a week long vacation in Ruidoso, New Mexico. Ron's mom has a house there. It was Ron, his mom, his brother and I. We had a blast and actually had the chance to relax and enjoy ourselves. We had planned the trip to celebrate the end of chemo but it was a wonderful trip regardless. I will write again soon. Thank you so much to everyone for your positive thoughts and prayers!
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