I apologize for taking so long to write an update but we have been very busy with moving and everything.
We went to the doctor last week. She told us that Ron's MRI from June showed a lot of improvement in the stroke areas and there were no new strokes. His spinal tap results were also good. His protein levels and his spinal pressure levels are all down, inching closer to normal. We started tapering his steroid last week and have seen no ill effects so far. The doctor is having us taper 5mg at a time unstead of 10mg. He will have another MRI in 6 weeks or so to make sure that his body is tolerating the lack of steroids and their are no new strokes. Once he gets down to 10mg or less of the steroid, the doctor said he can go back to work. He is super excited about that prospect. He will continue taking the oral chemo for an undetermined amount of time for now. He will be allowed to work while on the oral chemo.
He is feeling pretty good and is enjoying our new apartment. Neither of us have ever lived in an apartment so it is an adventure. He really enjoys the swimming pool and the workout room. Thank you so much for all of your support. I do not know what we would have done without all of you behind us.
1 comment:
HI, I came across your blog while I was researching CNS vasculitis. My grandma, 69 yrs old, was in the hospital for 4 weeks after we finally took her for confusion, tiredness, memory loss, unbalanced, etc. The Drs told us at first she had brain cancer, then said she didn't have cancer but she does have CNS vasculitis. They gave her steriods, then sent her home yesterday. She is still confined to a bed, rarely responds, rarely talks, cannot get up, lost left side of body due to multiple strokes and was given cytoxan Monday. The Drs said if she doesn't respond to the chemo drug then there is nothing else to give her. Since you've been through this and your husband is getting better (congrats!!) I was wondering what your thoughts are. We've only been to one hospital and I haven't been impressed with the Drs there. She too, has mutiple lesions on her brain. She now has a feeding tube that she takes her medicine through. I really appreciate your thoughts. My email address is shellee.lester@verizon.net. Thank you so much!! I hope you respond. My family is at a loss right now.
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